This has been on my mind lately. My dad is going through it, his sister has got it pretty bad and I apparently have the predisposed gene to get in my future.

I’m leaning no because I wouldn’t want to make my child go through slowly watching their dad’s mind leave them and also potentially pass it on to them when they get older.

It’s thrown me for a loop since I always imagined myself having kids and I’m around that age now.

What do you think?


Edit: I just want to say that I did not expect the kind of response this post got. I’m grateful for all of your comments and the perspectives it’s allowed me to peak into.

I also should mention that were I to have children they would most certainly not be burdened by being the crutch of my own personal journey of accepting and loving who I am. That is work for me alone and I would never unload that responsibility onto those I love and especially those who I’d be raising.

As for my partner not wanting kids, I would never consider forcing or persuading them to raise a child when they know for certain it’s not in their cards. This is another element in how I’ve been navigating this question. I love her with everything I have and I can’t imagine us being apart and yet there is a pang that lingers of the father I assumed I would eventually become.

Anyway, thanks again for your thoughtful replies. They’ve helped so much especially since this is the first time I’ve voiced these thoughts.

  • NoughtE@lemmy.world
    link
    fedilink
    arrow-up
    14
    ·
    1 year ago

    I have strictly instructed my family, including my wife, that if I ever develop alzheimers I want to be euthanized. If I am sufficiently lucid at the point of diagnosis I will have no problem overdosing on something and going out in peace.

    • Mog_fanatic@lemmy.world
      link
      fedilink
      arrow-up
      3
      ·
      1 year ago

      I’ve come up with the idea of an annual test of basic facts and current events (very basic). Once I get to the point where I can’t pass this test with flying colors, off me and launch my corpse into the ocean via trebuchet plz. Game over. Not interested in seeing where the rest of that ride goes. Seen it many times before with family members and I don’t like it.

      • blady_blah@lemmy.world
        link
        fedilink
        arrow-up
        3
        ·
        1 year ago

        Problem is there’s a catch 22. If you’re not lucid enough to answer those questions, you’re not lucid enough side whether you live or die from a legal standpoint.

        Every law I know that allows euthanasia requires that the person have a terminal illness and enough mental faculties to make the decision. You run the risk of a loved one getting tried for murder if you ask them to give you the drugs and you are not competent to make the decision yourself.

  • yenahmik@lemmy.world
    link
    fedilink
    arrow-up
    15
    arrow-down
    2
    ·
    1 year ago

    There have been some major strides in treatments that slow and/or halt the progression of Alzheimer’s recently. I would think that in the next 30-50 years it would be a much more manageable disease.

    I understand the concern of passing it down, but there is always adoption or sperm/egg donation, if you still wanted to be a parent. Honestly, nothing is guaranteed. You could die of something else long before Alzheimer’s could develop, or you could live to 100 in perfect health. Most of us will fall somewhere in between.

    I wouldn’t let something like that stop you from starting a family if it’s what you really want in life.

    • cygnus_velum@lemmy.worldOP
      link
      fedilink
      arrow-up
      7
      ·
      edit-2
      1 year ago

      Yes, my dad has been on medication that slows it, but it’s definitely taken a turn these past few months. We had to get the doctor to tell him to stop driving this month. It’s been really hard on him especially since he doesn’t know why and thinks it’s his fault and that it must be because he is simply too dumb enough to drive. It’s truly heartbreaking.

      Also, that’s a good point that something entirely different could happen before Alzheimer’s.

      I don’t have really any big fears in my life. I’m good with heights, I can run workshops and talk in front of hundreds of people. But I’ve always truly feared losing my mind since my psych 101 class in college. My plan is to go to a country that allows assisted suicide if I do end up getting it and can still make decisions in my right mind.

  • bobaduk@lemmy.world
    link
    fedilink
    arrow-up
    11
    arrow-down
    1
    ·
    1 year ago

    From your other replies it seems like you’re unsure you want kids in any case, but if you do there’s a simple thought experiment here: do you wish your father hadn’t had you? If not, it’s reasonable to think your children would be just as grateful to be alive as you are, sick dad or not.

    • Enma Ai@lemmy.world
      link
      fedilink
      arrow-up
      6
      arrow-down
      2
      ·
      1 year ago

      The positive for experiences dont equal out the negative experiences though. Negative experiences weigh more

      • CiderApplenTea@lemmy.world
        link
        fedilink
        arrow-up
        2
        ·
        1 year ago

        But still, that would be weighed correctly in the question whether OP is glad their dad had them, the question isn’t whether they haven’t had happy memories

    • droans@lemmy.world
      link
      fedilink
      arrow-up
      4
      ·
      1 year ago

      it seems like you’re unsure you want kids in any case

      Unless you’re certain you want kids, don’t have them. I love my little one, but it’s not easy.

      Kids deserve to have parents who can give them 100% and you do not want to live the rest of your life resenting them.

  • Mog_fanatic@lemmy.world
    link
    fedilink
    arrow-up
    8
    ·
    1 year ago

    This is the main reason I have not had children. I am almost 100% guaranteed to get Alzheimer’s in the pretty near future. Having watched countless of my family members go through the absolutely heart wrenching process of Alzheimer’s progression, I can’t in good conscience have children (so far anyway, I’m not 100% on it) for two reasons:

    • I don’t want to put them through the grueling process of caring for, and dealing with someone dying from Alzheimer’s

    • While it’s not guaranteed obviously, I don’t want to doom a child to a very very good chance of getting Alzheimer’s at some point in their lives.

    There is of course a chance for a treatment to be developed but they’ve been saying that for decades and haven’t really come up with much of anything so far.

  • keider@lemmy.world
    link
    fedilink
    English
    arrow-up
    7
    arrow-down
    1
    ·
    1 year ago

    There might be a cure for Alzheimer’s when you turn 65, medicine is advancing pretty rapidly now.

  • adrianmalacoda@lemmy.ml
    link
    fedilink
    arrow-up
    6
    ·
    1 year ago

    I don’t want to have children, but if I knew I was going to get Alzheimer’s at 65 I would plan to leave this world at 64.

  • MrFunnyMoustache@lemmy.ml
    link
    fedilink
    arrow-up
    6
    arrow-down
    1
    ·
    1 year ago

    As a person who doesn’t want kids anyway, I might not be the target audience of your question, but I will weigh in regardless.

    There are two components here:

    1. Bringing someone to existence when they are likely to inherit this terrible disease.

    2. Having your children experience seeing their parent with this disease.

    You don’t have to subscribe to anti-natalism to decide that it would be better to not have kids in this situation.

    You could however, if you still want to raise children, but don’t want to worry about #1, you can adopt. Plus you will spare yourself/your partner the pain and risk of pregnancy and childbirth, while at the same time give a family to a child who has none. Problem #2 will still be there, but depending on the age of the kid you adopt, they won’t be as young when/if you develop the symptoms and therefore might be better equipped to handle that.

    • PeWu@lemmy.ml
      link
      fedilink
      arrow-up
      2
      arrow-down
      1
      ·
      1 year ago

      I wouldn’t even be alive to this age, much more having kids

  • bi_tux@lemmy.world
    link
    fedilink
    arrow-up
    4
    ·
    1 year ago

    This thread makea me think of dark souls 1, where Siglinde of Catharina had to kill her father as he went hollow.

    But seriosly, you seem like quiet a good parent, maybe adopt children, if you don’t want them to have bad odds of getting Alzheimer. Also realisticly your partner would be the first person who’d take care of you.

  • Dlayknee@lemmy.world
    link
    fedilink
    arrow-up
    3
    arrow-down
    1
    ·
    1 year ago

    I lost my grandmother and dad to Alzheimer’s. I feel like it’s probably in my future, as well. It’s a miserable disease that makes me question a lot of end-care practices and my wife & I are absolutely going to have some strategies in place, but to answer your question we already have 3 beautiful children that I can’t imagine life without (pretty sure there’s an Alzheimer’s joke in there, somewhere). I certainly don’t want to put them through what I saw with my Dad, but I also wouldn’t want to have missed out on all the wonderful experiences I’ve had/will have with them on account of a “what if”.

    Ultimately, the choice is yours to make but you’re clearly putting a lot of worthwhile thought into it and I’m sure whatever you decide will be the best choice for you. I’m sorry about your dad & sister, and if you ever need someone to talk to I’m here.

  • DeaDSouL@lemmy.ml
    link
    fedilink
    arrow-up
    1
    arrow-down
    1
    ·
    1 year ago

    Of course I would. Even if I knew I’m getting it in 10 years after having kids… Because I want to make sure they learn from the person (me) who loves them more than himself. I want them to prepared for the crazy ideas out there. I want to raise them with love. I want to tell them the truth about the lies that unfortunately so many people are believing. I want to prepare them to understand the life, and face when they have to.